Executive Director About the Company Esteemed organization providing support services to individuals with Erdheim-Chester Disease
Industry
Non-Profit Organization Management
Type
Non Profit
Founded
2009
Employees
2-10
Categories AdviceConsultingEducationHealth CareNon Profit Specialties Patient AdvocacyCaregiverRare Disease AwarenessFundraisingPatient and Family GatheringsMedical SymposiumResearchGrantsPatient SupportCaregiver SupportNetworkingRare DiseaseCancerand Oncology About the Role The Company is seeking an Executive Director to provide thought leadership, strategic direction, and influence for its mission. The successful candidate will be responsible for overseeing and actively participating in the organization's day-to-day operations, as well as cultivating positive and healthy relationships with the internal team, board of directors, patients, families, medical community, volunteers, partners, and funders. This role requires a strategic visionary who can collaborate with the board and staff to ensure the mission is fulfilled, lead the organization to sustainability, and manage strategic planning for long-term success. The Executive Director will also be involved in organizational leadership, including the development and maintenance of systems to track and evaluate programs, and will be the primary figure in fund development, public relations, and fiscal management.
Applicants for the Executive Director position at the company should have a Bachelor's degree in a related field, with a minimum of 5 years' of nonprofit leadership experience or in a related senior leadership position. The role demands a candidate with a strong business acumen, a proven track record in fundraising, and the ability to effectively manage, lead, and empower a team. Excellent communication skills are essential, as the Executive Director will serve as the organization's spokesperson, and the ability to work with a diverse set of stakeholders is crucial. Experience in event planning, volunteer management, and patient advocacy is preferred, and the candidate should be community-minded with a passion for the organization's mission. The role also requires the ability to work effectively in a remote setting and a willingness to travel as needed.
Hiring Manager Title
Board Chair
Travel Percent
Less than 10%
Functions CEO/PresidentNon-Profit ManagementOperationsGeneral ManagementStrategy
